Espo's  Hope

Cure CJD

Espo's Story

 
 

My Story



My world was forever changed on September 23, 2012. My husband Bobby Esposito was taken by CJD at the age of 47. In early July of 2012, he began having some symptoms similar to a middle ear infection. However the symptoms progressed rapidly, thereby ruling out this diagnosis. On August 7, 2012, he was admitted to the hospital where he spent the next 7 weeks being transferred between hospitals and Nursing Facilities and having a multitude of tests conducted as the doctors were unable to diagnose the problem. It was like a real life episode of “House.” Towards the end he wasn’t able to speak, see, walk, eat, or perform basic human functions. During those 7 weeks, the hospitals and nursing facilities became my home away from home as I never left his side, staying with him 24/7. I remember one day while in the hospital, he was hardly able to walk and was having seizures. He was nervous and afraid and asked me to lay by him and said “Babe, you’ll need to cancel Thanksgiving dinner as I won’t be here. Please pray to St Jude that he gives the doctors the wisdom to find the cure”. That day was the first of many traumatic and heartbreaking days in my life. He was finally diagnosed with CJD and passed away just 3 weeks after his diagnosis. The 7 weeks during his illness were the longest weeks in my life


Espo's Hope was founded as I am passionate about fulfilling Bobby's wish of finding a treatment and cure by raising awareness and helping those who are affected by watching their loved ones become overtaken by CJD.  In the past 4 years Espo's Hope has raised over $113,000. This year's event will take place on October 7th, at the Crowne Plaza in Green Tree, PA.  Proceeds from this event will benefit the Creutzfeldt-Jakob Disease Foundation, Inc. in loving memory of Bobby and ear marked for research. This research will help fulfill Bobby's wish to find a cure for this horrendous disease. We have also started the Bobby Esposito Memorial Scholarship Fund through Washington and Jefferson College that will be awarded to a student going into the field of Medical Research.  If you have any questions or would like more information, please contact Espo's Hope at (412) 848-6367 or [email protected] . I look forward to working with you on the 5th annual Espo’s Night of Hope for CJD. Thank you in advance for your support,


Kathy Esposito